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Pregnancy Outcomes in Women with Spina Bifida

Dear Participant, 


We are conducting a research study to better understand pregnancy complications and outcomes in women with Spina Bifida.  We believe this is an important area of investigation because of the potential complications that women with Spina Bifida may encounter during pregnancy. In the current medical literature, there is limited information on this specific area of pregnancy care. Thus, we hope through conducting a survey of complications and outcomes, information will be gathered to directly influence medical professional’s practice in a positive way.  


The survey should take 20 minutes to complete. Participation is voluntary and anonymous. You can choose to withdraw from the survey at any time by closing your web-browser. Your consent is implied by completion of the online survey. There may be no direct benefit to you by participating in this survey. However, we plan to distribute an analysis of the final results by publication. Results will be available to you for review after study completion. 


This study has been reviewed and approved by the Sunnybrook Health Sciences Centre Research Ethics Board. If you have any questions you can contact the Sunnybrook Health Sciences REB at 416-480-6100.




Principal Investigator 

Dr. Anne Berndl MD, MSc, FRCSC

Assistant Professor University of Toronto

Division of Maternal Fetal Medicine 

Department of Obstetrics and Gynaecology,

Associate Scientist, Sunnybrook Research Institute

Sunnybrook Health Sciences Centre 


This survey is anonymous.

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